The national data opt-out service was introduced on 25 May 2018 following recommendations by the National Data Guardian who in her independent review of data security, consent and opt-outs (2016) said: “A patient should be able to state their preference once (online or in person), confident in the knowledge that this will be applied across the health and social care system.”
The Patient Data Choices Project is a collaboration between NHS Digital and the Royal College of General Practitioners and has delivered a series of events and portfolio of resources to inform primary care teams on the national data opt-out
The Patient Data Choices Project is specifically focused on primary care teams.
Toolkit
These resources have been created to inform primary care teams so that they are able to confidently and accurately advise patients and carers on their data sharing options and to support primary care teams to uphold the national data opt-out within their own practice.
eLearning module
This course introduces the changes to the choices people have about the use of their data for planning and research in England. It outlines the new national data opt-out for England and provides the information needed in practices to support patients in making their data choices should they seek advice in the practice.