My Healthcare Passport
In 2011, the Royal College of General Practitioners NI was commissioned by the Public Health Agency NI to create a tool for patients with progressive, life-limiting illness, their families and carers which would improve the collection, availability and reliability of clinical information associated with patients.
The funding for this project covered the costs associated with a two year project which began in September 2011.
After a successful recruitment process in December 2011, a Clinical Lead, Dr Ainé Abbott, was appointed to the Working Group in January 2012.
Development of guidelines
The RCGP Northern Ireland End of Life Care Working Group aimed to consider the delivery and implementation of the Royal College of General Practitioners guidelines on End of Life Care, in consideration with the Department of Health (NI) Palliative and End of Life Care Strategy.
During the development process of this passport it was realised that the project reaches beyond the scope of End of Life care and into general care for all patients with progressive life limiting illness, their families and carers.
The RCGPNI recognised that patients, families and carers can often feel overwhelmed with the amount of information and the number of healthcare professionals they come into contact with throughout the healthcare journey. Some patients have communication issues due to their condition and detailing their medical history can be difficult and frustrating. This tool was specifically developed to help alleviate these problems.
On the 22 January 2014, What I Need You to Know: A Health and Care Record for Me, My Family and Carers My Healthcare Passport was launched at the Malone Lodge Hotel in Belfast. The development and design involved those living with medical conditions, carers, patient advocate groups and other interested parties alongside a range of health and social care professional representatives.
This relatively simple, yet effective tool will allow users to share information ranging from their core values and daily routine to who their healthcare team is and where to access useful resources about their condition.
To find out more about the My Healthcare Passport or if you have any trouble downloading the documents below please contact Catherine Tumelty at firstname.lastname@example.org or telephone 020 3188 7722.