Patient Data Choices

The Patient Data Choices Project is Project is a collaboration between NHS Digital and the Royal College of General Practitioners which aims to deliver a portfolio of resources and events to inform primary care teams on a new national data opt-out as recommended by the National Data Guardian' in her Review of Data Security, Consent and Opt-outs.

The aims of the project are to inform primary care teams so that they are able to confidently and accurately advise patients and carers on their data sharing options and to support primary care teams to uphold the national data opt-out within their own practice.

National Data Opt-out Programme 

NHS Digital is developing a new system to support national data opt-out which will give patients more control over how their data is used. The system will let patients exercise their right to make an informed choice about whether their data is only used for their individual care and treatment or also shared for research and planning purposes. The Patient Data Choices Project is specifically focused on primary care teams. 

Toolkit

These resources have been created to inform primary care teams so that they are able to confidently and accurately advise patients and carers on their data sharing options and to support primary care teams to uphold the national data opt-out within their own practice.

eLearning module

This course will introduce the changes to the choices people have about the use of their data for planning and research in England. It will outline the new national data opt-out for England and provide the information needed in practices to support patients in making their data choices should they seek advice in the practice.

 

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