The Dementia Roadmap: what is it and why is it needed?

Dr Jill Rasmussen, RCGP Clinical Champion for Dementia, on behalf of the Dementia Roadmap Steering and Delivery Groups

Rationale and Background:

There is a wealth of information, guidance, tools and resources that can optimise care and support for people with dementia, their family and carers at the time of diagnosis and throughout the dementia journey. However, it is often time consuming to read and difficult to access from the surgery desktop.

The Dementia Roadmap is a tool to assist primary care staff to more effectively support patients, families and carers presenting with cognitive impairment and memory problems. The Dementia Roadmap is a platform that brings together high quality information about living well with dementia in a coherent and accessible structure that is easy to use. The Dementia Roadmap links to general information and is customised to include information about local services and resources.

Development:

The pilot phase has delivered local Dementia Roadmaps built upon a common structure for three localities: Northern Eastern and Western (NEW) Devon, North Somerset and South Gloucestershire. Each local Roadmap provides general information about the dementia journey alongside local information about services, support groups and care pathways unique to that particular locality.

It is important to appreciate that the Dementia Roadmap is a platform on which groups such as Clinical Commissioning Groups (CCGs) can present information related to dementia care. The content of the Roadmap is owned and managed by a local multi-stakeholder steering group to ensure it meets quality standards, for example that is up to date and appropriate.

Benefits:

The Dementia Roadmap is designed by GPs and other primary care staff with clarity, quality and ease of use in mind.

The main users who will benefit from the Dementia Roadmap are:

  • Staff working in primary and community care (GPs, nurses, dementia navigators and practice managers
  • Professionals, families and carers supporting people with dementia
  • People worried about memory problems
  • People living with dementia

Even within the short time that the Dementia Roadmap has been in use, the three pilot sites are already seeing benefits of a resource that saves a person hours relating to the information provision for dementia care.

Users of the Dementia Roadmap (health professionals, patients, families and carers) will be asked to complete an evaluation questionnaire to obtain feedback about ease of use, quality and type of information and advantages compared with previous experience. This data will provide evidence to demonstrate and support the cost effectiveness of the Dementia Roadmap.

Key Features:

The Dementia Roadmap provides:

  • A coherent structure reflecting the dementia journey
  • Signposting people to existing high quality sources of information
  • Accessibility and ease of use
  • Customisation for local information
  • Availability on mobile, tablet and desktop devices

The Future:

The Dementia Road Map was launched in May 2014 at the College followed by presentations at conferences in the UK.

It is hoped that Dementia Roadmaps will be available throughout England and Wales; there have already been expressions of interest from a number of CCGs.

For more information, please visit the website here or email this address.

Acknowledgements:

Rowan Purdy Technical Adviser (Knowledge and Innovation Partnerships), Rigoberto Pizarro-Duhart, Martin Thompson - Project Management support (Clinical Innovation and Research Centre - RCGP). Anna Dowrick (Alzheimer's Society), Dr Nick Cartmell (GP lead SCN South West), Carrie Morgan (Project Manager), Kate Schneider (NHS England), Claire Warner (NHS England), PixelAir. The Pilot CCGs - South Gloucestershire, NEW Devon, North Somerset.

This work has been funded by the Department of Health and involves a collaboration between the Royal College of General Practitioners (RCGP), the Alzheimer's Society and the Strategic Clinical Network for Mental Health, Dementia and Neurological Conditions South West.

Declarations of Interest:

NHS:

  • East Surrey CCG Commissioning Lead for Mental Health, Learning Disability and Dementia
  • Strategic Clinical Network SE Coast Dementia Lead
  • Co-developer of MoodHive (Depression Anxiety Pathway)

Royal College of General Practitioners

  • Chair Learning Disability Special Interest Group
  • Clinical Champion Dementia

Consultancy / Advisory Boards / Speakers Bureau:

AstraZeneca, Alzheimer's Society, Chronos, Lilly, Lundbeck, MGP, Napp, Cerestim, Otsuka, Pfizer, Roche, Servier, Tagacept, TauRX.

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