A Palliative and End of Life Care Toolkit
Dr Michael Brookes, RCGP/Marie Curie Clinical Fellow for End of Life Care
Dr Michael Brookes, RCGP/Marie Curie Palliative and End of Life Care Clinical Support Fellow has made it his mission over the last few months to collate relevant resources from across the UK into one easy to manage format…
Some of you might be like me with lever arch files on shelves full of torn out medical journal articles and information hand-outs, lovingly filed and awaiting their chance to be of use and provide that elusive gem of knowledge or protocol information. Over time, the collection of folders slowly propagates and only the super organised will contemplate an indexing system. By the time you get to this, the floor has already collapsed under the weight of paper and the staff below narrowly escaped injury. There is so much information available online now, that the need to accumulate paper has long passed. Over the last few months, many of my colleagues have shared with me their most helpful and favourite web resources for palliative and end of life care. The RCGP has compiled these into an online Palliative and End of Life toolkit for use by clinicians, commissioners and our ‘customers’ (patients and their families and carers).
This is one of many outputs from the Palliative and End of Life Care Clinical Priority Programme in the RCGP’s Clinical Innovation and Research Centre (CIRC), delivered in partnership with Marie Curie. The priority, established in 2012, has always aimed to raise awareness of the success factors and challenges in delivering end of life care in primary care, seeking to champion approaches which are formed by patient preferences and choices.
The toolkit has been designed to be a one-stop shop and has been structured to provide access to information sources in a logical and practical way. Hopefully we have achieved a balance, with the availability of guidelines and formularies as well as the heftier strategic documents and also patient resources. The toolkit can be accessed by anyone without charge, so patients and their families can be signposted there, or alternatively the links cut and pasted into emails to send to them. The site can be accessed remotely, so is useful for home visits as well. As nothing in medicine stands still, I am always happy to receive comments and suggestions for the site and will provide quarterly updates. Please email email@example.com if you have any suggestions.
The only disadvantages with the electronic toolkit compared to its paper cousins is that I no longer appear learned with empty bookshelves and I don’t have anything to prop the consulting room door open.
Access the toolkit.
Join our End of life Care GP network
On a extra note, we have formed a GP EOLC advisory forum – 150 GPs put their names forward to help us champion EOLC around the country as well as peer reviewing and developing our work. If you would like to get involved, please contact firstname.lastname@example.org